COFFI Consumer-researcher Online Seminar III - Where lived experience and science meet

“Post-exertional malaise and setbacks in chronic fatigue conditions: Cutting-edge neuroscience approach”

Live Seminar was held on Tuesday, November 12th, 2024 (20:30 CET, 19:30 GMT, 12:30 MST)/ Wednesday, November 13th (06:30 AEDT).

People with chronic fatigue conditions can experience recurrence of symptoms, often precipitated by physical, emotional or cognitive exertion. Termed post-exertional malaise (PEM), this can pose a big challenge to full recovery. We aim to explore explanations and management approaches for post-exertional malaise and setbacks in chronic fatigue conditions in a dialogue between research scientists, clinicians and consumers.

COFFI is a global research collaborative dedicated to research to help explain, treat and manage fatigue and persistent somatic symptoms following infection. The COFFI Consumer Advisory Group advise on COFFI’s research portfolio, and promote constructive public narrative around helping patients, researchers and practitioners work together for managing and recovering from these conditions.

Watch the Seminar replay here on Youtube

Contributors 

	Professor Silje Reme Health Psychologist Head of the Mind-Body Laboratory, University of Oslo Steering Group Chair, Oslo Fatigue Network Professor Silje Reme is a clinical pain psychologist at Oslo University Hospital. Her research focuses on chronic pain treatment, chronic post-surgical pain prevention, chronic fatigue, stress, and work disability. https://www.mindbodylab.no/
	Dr Becca Kennedy Family Medicine Physician                Portland, Oregon Member of the Oslo Fatigue Network Dr. Becca Kennedy. She used an evidence-based neuroscience approach to chronic conditions while working at Kaiser Permanente, where she was the lead of the Long-COVID specialty group for the Northwest Kaiser region. Dr. Kennedy now runs her own clinic for chronic conditions using this neuroscience model of care. https://resilience-healthcare.com/
	Rachel Whitfield Leadership Trainer and Coach Bristol, UK Co-chair COFFI Consumer Advisory Committee COFFI Rachel Whitfield developed long covid during the pandemic and has now fully recovered.  She has since told her story multiple times to the BBC and ITV as well as a variety of podcasts, YouTube channels and her blog, helping many people find a path to recovery.  With a background in biochemistry, she is now a leadership trainer and coach.  https://mylongcovidjourney.wordpress.com/
	Fiona Symington Oxford, UK Member of the COFFI Consumer Advisory Committee Fiona Symington lived with M.E/CFS for 14 years, and chronic pain for 25 years before recovering completely using mind-body medicine five years ago. .She is now passionate about the science that helped her recover and which is helping many others find relief from a variety of chronic symptoms. https://www.livingproof.org.uk/me-cfs

Timetable

Time (UK)	Title	Presenter
19:30	Welcome and introduction	Rachel Whitfield
19:35	Experiences of post-exertional malaise	Fiona Symington, Rachel Whitfield
19:40	Scientific explanations	Prof Silje Reme
19:50	Resonance with lived experience	Fiona Symington, Rachel Whitfield
19:55	Approaches that may help post-exertional malaise	Dr. Becca Kennedy
20:05	Discussion and questions
20:15	Questions from the audience	All
20:30	Closing	Rachel Whitfield, Prof Silje Reme

To keep up to date with live events, please email coffi-collaborative@outlook.com