The COFFI Consumer Advisory Committee (CAC) represents consumer perspectives within the COFFI Collaborative. The CAC met informally in December 2021 to reflect on consumer priorities and refined three broad areas and questions that they would like information from the scientists - either through what they know from the field and what their research is beginning to show.
The three topics explored in the workshop were:
1. The illness trajectory
2. Mind-body explanations of the symptoms
3. What helps people recover
The aim of the virtual workshop was to:
Help develop narratives from science that are useful for consumers
To help scientists draw on the consumer viewpoint in developing, designing and disseminating their research
The questions posed are a guide to initiate the dialogue, the format is experimental, but we hope this approach can be finessed over time
Further details and recording have been uploaded in the COFFI members portal.
