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Prevalence and Characteristics Associated With Post–COVID-19 Condition Among Non-hospitalized Adolescents and Young Adults.


Joel Selvakumar, MD; Lise Beier Havdal, MD; Martin Drevvatne, MD; Elias Myrstad Brodwall, MD; Lise Lund Berven, PhD; Tonje Stiansen-Sonerud, MSc; Gunnar Einvik, MD, PhD; Truls Michael Leegaard, MD, PhD; Trygve Tjade, MD; Annika E. Michelsen, PhD; Tom Eirik Mollnes, MD, PhD; Fridtjof Lund-Johansen, MD, PhD; Trygve Holmøy, MD, PhD; Henrik Zetterberg, MD, PhD; Kaj Blennow, MD, PhD; Carolina X. Sandler, PhD; Erin Cvejic, PhD; Andrew R. Lloyd, MD, PhD; Vegard Bruun Bratholm Wyller, MD, PhD




The COFFI Consumer Advisory Committee (CAC) represents consumer perspectives within the COFFI Collaborative. The CAC met informally in December 2021 to reflect on consumer priorities and refined three broad areas and questions that they would like information from the scientists - either through what they know from the field and what their research is beginning to show.


The three topics explored in the workshop were:

1. The illness trajectory

2. Mind-body explanations of the symptoms

3. What helps people recover


The aim of the virtual workshop was to:

  • Help develop narratives from science that are useful for consumers

  • To help scientists draw on the consumer viewpoint in developing, designing and disseminating their research

  • The questions posed are a guide to initiate the dialogue, the format is experimental, but we hope this approach can be finessed over time


Further details and recording have been uploaded in the COFFI members portal.


The upcoming European Congress of Clinical Microbiology and Infectious Diseases (ECCMID) will take place in Copenhagen, Denmark, on 15-18 April 2023. In addition to the main live congress, the Scientific Programme of ECCMID 2023 will consist of live-streamed, online-only events with topics in the fields of clinical microbiology and infectious diseases.


We are proud to announce the following speakers who will represent COFFI in a 2-hour Symposium titled "Post-Infective fatigue syndromes and long-COVID: similarities and differences" on the 17th of April, 2023.



Talk title: Prevalence and natural history of post-infective fatigue in adults and children

Speaker: Ben Katz, United States


Talk title: Pathophysiology of post-infective fatigue states

Speaker: Ruud Raijmakers, Netherlands


Talk title: Pathophysiology of long-COVID

Speaker: Knut Stavem, Norway



The ECCMID Scientific Programme can be found here:




©2020 by The Collaborative on Fatigue and related symptoms Following Infection (COFFI)

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